Book Review!

Like many children, Ben has a short attention span and sitting to read a book cover to cover is often an unrealistic goal. But as you can see in this video, he is perfectly capable of understanding concepts and discussing them in his own way! I highly recommend this book as a way to reinforce the concept of boundaries and to address social issues our kids encounter in their daily lives.

Buy the book: An Exceptional Children’s Guide to Touch by Hunter Manasco

An Interview with FamilyApp

“Despite the increased awareness in our culture, sexual abuse remains a very difficult topic to discuss. We want to believe it only happens to other people or in other places. But abuse knows no boundaries and is present in every demographic and socioeconomic class.”

Head over to to read more about Worth the Conversation’s work to prevent sexual abuse in children with special needs!

Teaching Social and Physical Boundaries

“The rules of physical contact can be tricky to grasp, especially for children with special needs who are at a heightened risk of abuse. This delightfully illustrated and friendly picture book simply and clearly explains how to tell the difference between acceptable and inappropriate touch, thereby helping keep the child with special needs safe.”

This book does an excellent job of using clear, concise language to discuss body boundaries and safety. I appreciate the introductory letter from the author that help parents and caregivers feel more comfortable discussing this important topic. Get your own copy of An Exceptional Children’s Guide to Touch or visit our Resources page for more book recommendations!

Abuse prevention begins in toddlerhood.

When I share with parents about my work in abuse prevention, I’m usually met with a heavy sigh and the confession: “I’ve worried about puberty and relationships since my son/daughter with Down syndrome was born!”  

I feel the same way. And there are some great resources addressing puberty and sexuality for young adults with intellectual disabilities. But I’m here to encourage parents to address healthy body boundaries and to keep kids safe BEFORE puberty. Abuse prevention actually starts in toddlerhood! 

Preventing sexual abuse means adopting a mindset that helps guide the decisions you make in everyday life. It involves educating yourself on the risk factors that make a child more vulnerable to abuse and then trusting your instincts when it comes to setting and reinforcing boundaries. The foundations we set in early childhood will help our children navigate healthy relationships later in life!

Understand the Risk Factors.

Learn these 7 Strategies to Prevent Sexual Abuse.

Here are Resources to give you confidence!

A Conversation About Sexual Abuse in the Down Syndrome Community with The Lucky Few Podcast

I was thrilled to be invited to share the work of Worth The Conversation and my passion for keeping kids safe with my friends at The Lucky Few Podcast. These ladies are “shifting the narrative by shouting the worth of people with Down syndrome” and truly are world changers. I’m so grateful they reached out to discuss this difficult topic!

“This is a complicated issue, but I truly believe that the Down Syndrome community is powerful enough to tackle this,” Lindsey Strickland on sexual abuse against children with Down Syndrome.  We are so grateful to have our wise friend, Lindsey here to engage in this important conversation and empower us all to make a change. We know sexual abuse is tough to talk about, but our kids are #WorthTheConversation.  Thankfully, today’s guest is well-versed in this conversation. Lindsey has spent many years working with Child Protective Services as a case manager for at-risk families, and she also grew up with foster siblings who had experienced abuse.  After working as a child advocate in a sexual assault clinic, she began to educate her community about the realities of child sexual abuse. Her extensive background, heart for outreach, and 6 year-old-son with Down Syndrome all lead her to create Worth The Conversation

Lindsey’s online platform serves to empower parents to protect their children with different abilities.  She acknowledges the many risk factors for our kids and encourages families to combat those dangers with fierce advocacy and clear communication.  Remember listeners, you have the right to be present during your child’s therapies, the right to drop in unannounced, and the right to set expectations and boundaries with your child’s doctors, teachers, aides, baby sitters, care givers, and more.  Let’s shout their worth and protect our kiddos, it’s definitely #WorthTheConversation.

Why Stranger Danger is Fake News: How to Reduce Opportunity by Understanding Who Abuses

Research consistently shows at least 1 in 10 children will experience some type of sexual abuse by the time they turn 18. Children with developmental disabilities are three times more likely to be victimized. It’s so easy to blame the problem of child sexual assault on corrupt culture, or assume it only happens to “other people.” But sexual abuse knows no boundaries. It’s present in all communities, socioeconomic classes and cultures. Abuse is happening in all the places where our children should be safe: homes, churches and schools. Children are abused most often by people the child knows and trusts. Many of you reading this are survivors of childhood sexual assault. I hope these statistics remind you that you are not alone and you are not to blame for what was done to you. If you have not personally experienced abuse, the statistics prove you most definitely know and love a survivor of abuse.

I’m well aware that people are not excited to read about the victimization of children, but here’s the thing: parents already know and worry about sexual abuse, especially those of us with a child with developmental disabilities. So instead of living with constant anxiety and a sense of helplessness, let’s talk about the problem so we can recognize, respond, and ultimately prevent it from happening in the first place. Preventing sexual abuse of children requires adopting an overall awareness and mindset; learning about who abuses and how they do so is crucial in preventing abuse.

Research shows at least 90% of perpetrators are someone the child and family already know and trust. 

Continue reading Why Stranger Danger is Fake News: How to Reduce Opportunity by Understanding Who Abuses

Teaching Body Boundaries: It’s ok to say NO

Today’s post is about teaching your child to say “no.” I know what you’re probably thinking: nailed that one! We certainly have in our home. Despite Ben’s limited verbal ability, he’s able to shut me down all day long. Even if he really wants something, the reply to my request is usually a resounding “NO.” But here’s the thing: being able to say no is a very important skill, especially when it comes to body boundaries. Continue reading Teaching Body Boundaries: It’s ok to say NO

Primary Prevention and Why It Matters

In order to address the specifics of preventing sexual abuse in children with Down syndrome, we first have to understand what is referred to as primary prevention in the field of sexual violence prevention. Primary prevention aims to change the deeply rooted cultural attitudes that lead to inequalities which put certain populations at an increased risk of sexual abuse. Those of us parenting a child with Down syndrome are already doing the daily work to uproot prejudice against our children. Continue reading Primary Prevention and Why It Matters

Let’s Start this Conversation

Once upon a time, I had a job that gave me a paycheck. I worked as the child advocate at a crisis center where I provided education and support for children and families impacted by sexual abuse. I absolutely loved everything about it: giving awareness talks in the community, co facilitating equine therapy summer camps, and even helping teens prepare to testify against their abuser in court. It was intense meaningful work that would often shut down the polite, “What do you do?” party conversation in two seconds flat. Despite my Debbie Downer vibe at social gatherings, every now and then someone would find out what I did for a living and summon the courage to share their story with me. It was, and is, always a privilege to be invited to hear someone’s story of surviving trauma. 

Continue reading Let’s Start this Conversation